SSI was created in aim to help the disabled and elderly, yet in our personal experience, we have found this program to limit individuals and their families, stripping them of basic liberties and autonomy.
All in Health
SSI was created in aim to help the disabled and elderly, yet in our personal experience, we have found this program to limit individuals and their families, stripping them of basic liberties and autonomy.
There is often a stepping out into discomfort, in order to stand up for your child’s needs.
To extend empathy is not a courtesy, it is being human.
Post trauma has surfaced in ways unanticipated…
So, for the individuals who are up in arms over my lack of “encapsulating the dark side of Down syndrome”, I here offer you just that.
I spent the better part of Sunday’s church sermon with tears streaming down my face.
...waves of nausea, eye-twitching, sleep deprivation, heaviness of chest, contracting throat, and liquefied knees....that about sums up where I am at.
Doctor appointments, physical therapies and early interventions simply aren’t going away. I can try powering through with an attitude of annoyance, or develope a alternate system. I need to master making it to and through appointments, with all the littles.
’It is not an innate capacity to be a parent of a child with Down syndrome...’
